HV Triad 6: Treated differently, some are worth more than others

Challenges of SSI Disability Benefits

For those individuals seeking SSI-Disability Benefits, individuals who can afford to hire an attorney to advocate and complete forms, and work within the system are two times more likely to be approved for benefits on the first “go around” that those who don’t and definitely increase the approval rating when reapplying after initial denial. However, those who are really in need of guidance, often have lower incomes (if any) and cannot afford or have the ability or access to easily obtain legal counsel. Once approved for benefits, the waiting period for health care access and services through Medicare does not begin until 2 years after approval — a time when many need it most. “People who will become eligible for SSDI benefits are significantly more likely to be uninsured than other workers—an average of 22 percent over the three years prior to SSDI entry, compared with 16 percent in the general population” with the likelihood “living in a family whose income is below the federal poverty level being twice as high among people receiving SSDI benefits as among those who have not yet become disabled” The cost of coverage through COBRA is “cost-prohibitive” for many of these individuals.

Many individuals and families absolutely give up even trying to obtain these benefits even though they are entitled to receive the funds and critical health care services.

No Cocktails For You

My son’s father passed away due to complications from COVID….he was exposed (on his job at the water utilities department) while working in very close quarters with a contractor who had tested positive for the disease. There is no hospital in the rural county where he lives, but he was transported by ambulance to the closest facility about 30 minutes away with obvious signs of apoxia, O2 levels well below the 94% that most acknowledge as a threshold for concern. He spent about 6 hours in the ER before he was moved into a room…on a regular floor (where the nurse to patient ratio is much lower). He was ultimately moved to ICU, intubated, and…there is actually no “and,” there’s a “BUT.” But, he died.

My son’s dad fought, my son fought for him….finally getting eyes on his case after a personal friend of his called the CEO of one of the largest health systems in the country. That gentleman reached out to the CEO of the hospital where his dad was a patient. Several specialists were consulted. All of this after 8p on August 25th. They all said they wish they’d consulted on the case sooner…it was too late. We know that because he passed away the next morning on August 26th.

Inequality of Opportunity in a Prison

Last spring, prior to the pandemic, I volunteered as a teaching assistant at a prison that offered some inmates the opportunity to receive an associate degree. In order to be eligible, there were requirements such as not having had an incident in the past 6 months. Despite the majority of prisoners being Black, my class only had 3 Black students of 13 students total. This represents inequity because in a prison where less than 25% of prisoners are white, white prisoners represented over 75% of this class, a class which was designed to create more opportunities for them upon release.

Adoption Bias in OBGYN Setting

As a black women with fertility concerns, my Asian OB-GYN, suggested I freeze my eggs or start planning for adoption. However, the doctor warned me not to get a black baby because they usually crack babies, and to think about adopting a Chinese baby.

Inequity treating addictions

In trying to combat the opioid epidemic in 2017, I was confronted by a black friend who expressed his anger at the way the healthcare system, legal system, and local governments were now rallying to this cause, which he attributed to the impact on the white community. He was right. This was and is a glaring example of inequity. I considered all the partners involved in the effort to combat the epidemic, and I realized that almost none were black or Latino. Our previous attempts to combat substance use disorders and addictions had been largely punitive and enforced along racial lines. These biases and practices continue today in how we treat addiction and its community effects.

#715

I loved baseball as a kid and one of my earlier memories is of Hank Aaron hitting home run #715 and breaking Babe Ruth’s record. The way everyone in my immediate family huddled around the tv, it seemed like a really important moment, everyone waiting to see if this at bat would be the one. When he hit the ball out of the park, it was so exciting because he accomplished something everyone assumed was impossible. It felt like a really important moment. I found out from my dad that Hank got hate mail and death threats during his chase of the record. I remember thinking – what is wrong with people? Not only is that wrong, it’s so stupid. Who thinks like that? Within a few years I realized I had plenty of aunts, uncles, cousins who did. I still get Obama birther emails from an aunt.